Normalizing Grief (Capture Your Grief Project - Day 12)

The first thing to clear up is that there is no path of "normailty" with grief. There is no set steps of grief. Grief cannot be put into a category as grief is different for everyone. You can't compare someone grieving the loss of a parent to the loss of a baby or the grief of a pet to the loss of a friend. You just can't. Look around you, everyone is totally different so why should we be expected to grieve the same? I remember trawling the internet when Freddie first died. I didn't know how to grieve. I wanted to know how I should be behaving. All I found were "The Five Steps Of Grief". Aka the biggest load of shit ever. Chances are, at some point you will feel those emotions. But definitely not in that order and almost certainly not one at a time.

I couldn't find a picture that showed how grief is for me. So I wrote about what it feels like, for me anyway. It's not particularly well written but I just wanted to get it out in it's most raw form otherwise it wouldn't be true to my feelings. Anyway, here it is. My grief in a very small and in a no way totally exclusive nutshell.

The Island 

Grief is a really hard place to find yourself in. It's like you've been shipped to a totally foreign island. No one there speaks your language. Sometimes a passer by might try to understand you but eventually they give up and walk away because they just can't get it. They can't understand you because they don't come from the same place. You're trying to find your way around this island but you have no map so you're totally lost. You wander in a confused daze while everyone around you carries on their day. Even worse, you don't know your destination. Everyday you try and concentrate on "where am I going?". You never find the answer so you just carry on, aimless. And this island is noisy, so noisy. There are voices constantly ringing through your ears and you don't know if those voices are yours or someone else's. You can't ever turn them down or shut them off so you can't ever sleep, not properly. When you go back to continuing your pointless journey you're exhausted and you can't tell anyone because they can't understand you. Maybe sometimes you find a fragment of a map and you think you're going to be okay only for it to be blown away by the wind or for someone to snatch it from you. Your hope is constantly taken from you in one form or another. Maybe sometimes someone offers you a tissue once in a while to dry your tears but then they leave when the tears don't stop. You hope that one day a map will arrive for you and you'll know your destination. You hope that maybe one day someone will arrive and they'll be able to speak your language. At times that hope is so very strong and you try to hold onto it with all your might. But at other times the hope drifts away and you let it because you're tired and you're broken.

I'm not sure if grief will ever truly be normalized. We accept that people grieve and we try to help as best we can but there's only so much a person can do when they aren't feeling that same feeling. As a person that is grieving I think that's something we have to accept. Unfortunately, we aren't designed to take on another person's emotions and feelings. We can sympathize, we can try to help but we can't read minds. We can't absorb grief, even though we wish we could if it meant we could fully understand or half the pain of a loved one. That's one of the hardest lessons I've had to learn about the grieving process. You can't force someone to understand, nor can you expect them to. That's just how grief works. It's never going to change so I had to.

Little Baby

I haven't written poetry since I was in Year 8 and I won a poetry competition at school. I had to get up in front of the whole school and shake some rugby player's hand. I was totally mortified and it's clearly scarred me as I haven't written anything since. I don't really know why I felt so inspired to write this tonight but whilst Mattie played Fifa 16 *yawn* it just spilled out of me. I can imagine my English teacher tutting over my shoulder; it's hardly written well but it's real. It's raw and it's from the heart which is really what poetry is all about. Feel free to take it, share it or use it...I know it applies to so many of us.

Capture Your Grief - 2015

I am so excited to take part in the Capture Your Grief project this October. In some ways it is sad that I'm at a point in my life where I am grieving for my baby but I'm glad that I have the opportunity to focus the grief into something like this project. I know a lot of fellow grieving mums (and dads!) read this blog so I want to make everyone aware of this amazing event and encourage you all to take part!

What Is It?:
It's so simple, anyone can do it. You can choose to share it on social media or keep it in a private diary/scrapbook. Its a series of topics, one for everyday of the month of October and for each topic, you take a photo of what it means to you or what it represents to you. It's totally personal and subjective to you so you're totally in control. It has been created for us to explore our grief in order to help us on our journey of healing.

How Can I Take Part?:
Just have a camera! You don't need to be a photographer or have an amazing camera, it's not about getting professional photos, it's about capturing something that truly resonates with your grief and healing process. It only takes a few seconds to take a picture and upload it or to print it out and pop it in a diary.

Where Can I Get More Info?:
Right here! Or on the Facebook event here! Simple.

How Can I Follow Your Project?:
I'll be posting my pictures on Instagram (follow below) with the hashtag #CaptureYourGrief and #WhatHealsYou. I'll also be creating a photo diary/scrapbook which I will be doing a post on when the project is over!

Let me know how/where you'll be sharing your pictures in the comments!

Keeping Freddie In Our Lives

Freddie will always be in our hearts. That's a given, he will never, ever be forgotten. But for me, I need more than that.These days, it is very easy to be consumed with busy thoughts and stress (and a small devil dog named Olive) so it's crucial that I have a little area or reminder that lets me know he's still here with me.
We have little reminders of him dotted around our house. We have our star certificate that one of Mattie's friends bought for us. It is framed and sits proudly on our windowsill in the living room so that our star is often looking down on us. If you're ever unsure on what to give someone that has experienced a loss I highly recommend getting them a star in the name of their lost one. You can use the co-ordinates on the certificate to locate the star on google and as Mattie doesn't believe in God he finds it such a comfort to know Freddie is up there, twinkling as our little star.
Mattie's cousins gave us a poem that they wrote which is truly beautiful. I find it very hard to look at currently as it is quite emotional so I've left it wrapped carefully in a moving box. I want to put it in our rainbow baby's bedroom as I think that's the only time I'll be able to read it...even then I'm not sure I'll ever be able to read it comfortably. It stirs up so many raw emotions that I'm still trying to control.
Freddie's little slinky mouse is also a very important part of my life. When he was born it sat in his cot with him. I took it to the hospital with me as I wanted it to be the first toy he ever had and it still was. I was close to burying it with him but I couldn't let it go, mouse spent hours in his little hospital bed with him and I needed it. I clutched it like a child for a long time after he died. It came everywhere with me, like a comfort blanket. It smelt like him and I couldn't let it go, I still think it does smell of him but it's probably just my mind telling me that. I don't bring it with me every time we leave the house anymore but if ever we go away overnight it has to be with me. Mouse stays in our bed and if I ever struggle to sleep, cuddling mouse is a massive help. I've even woken in the night to find Mattie holding it. I defend that toy with my life, Olive has tried to run off with it a few times and normally I'm pretty relaxed with what she chews, Mouse is a big no-no. It represents our pain and it represents Freddie.
Those of you that know Mattie and I will know he is a BIG Arsenal fan, much to my dismay (I'm not a football or even sport fan). He has the Arsenal club logo tattooed *brings up sick in my throat* on his arm so that basically puts his love for them in a nutshell. Anyway, I digress... a week or maybe two before Freddie was born we went on a hunt to find a mini Arsenal football for Freddie. Mattie's theory was that if we introduced football from the second was born, we'd have a professional footballer for a son. Don't worry if your eyes just rolled in despair, mine did too (and still do daily). We kept the ball for baby number two, fingers crossed, so they can play with it and think of Freddie. It's pretty special to us as not only does it remind us of the dreams we lost when Freddie died but it gives us hope for another baby, it's a statement that we WILL try again.
My favourite way that I remember Freddie by is my little corner I have made for him in our room. I have a little white frame with my favourite picture of him from the day he was born. On my mirror is a little string of wooden hearts that were in his nursery, it killed me that we had to pack his nursery away so I've kept them out of the boxes of nursery items. There's a little poster with his birth information on it (his weight, where he was born, what time etc) that I purchased here. I've also added a little jar with a posy of flowers, I feel like it adds a more cheery touch to remind me to be happy and positive which isn't always possible but it gives me a good head-start to a happier day. It is so important that he is the last thing I see when I go to bed and the first thing I see when I wake up and with this little display it makes sure this is always guaranteed.

Why I Write My Blog

Initially I started this blog to update about my pregnancy, birth and to track Freddie's milestones as he passed through his childhood. Instead, it's transformed into a blog that documents my struggle through life without a baby, my baby, Freddie. I've lost the direction I'm taking this blog in, I'm not sure what it's going to be in a year from now. Maybe I'll be writing about a how I'm pregnant with a brother or sister for Freddie, maybe I'll have my rainbow baby already with me...I honestly don't know.

Right now, I'm writing this to stay sane. It gives me a purpose. When I lost Freddie I felt like I'd lost all meaning to my life, I drifted without direction. This blog gives me the focus that I'd been craving and that I so desperately needed. This blog gives me something to do...There's only so much dog walking and housework I can do! I'm definitely not ready to go back to work yet, sometimes I'm tempted to go back but then something hits me in the heart and I know it's just not going to happen yet. Some of my fellow angel mum's have gone back to work and I seriously salute them, but for me I'm just not ready yet.

I also like to share my experiences, situations and stories with other people that have experienced the loss of a baby. When I was in the earliest weeks of loss I had no idea if what I was feeling was normal, if how I was acting and reacting was OK. It took my a long time to accept that I was doing the best that I could be. It took a lot of trawling a lot of other blogs, the Sands forum and websites before I felt "normal". I want to be a part of that. If I help another Mum or Dad on their grief journey or if I reassure them they aren't crazy, if I bring people comfort then I'm happy. I've done something good, I've created a tiny legacy for Freddie that I am incredibly proud of. This might only be a little blog but behind it is so much love.

What I Lost.

You don't just lose a baby.

You lose the future you had planned for him. You lose the future you had planned for the both of you.

I've lost hearing that first wail when they're born that let's you know "I'm OK".
I've lost his first proper smile.
I've lost hearing his first baby sounds and words.
I've lost that moment when he takes his wobbly first steps towards my open arms.
I've lost the opportunity to cry as I wave goodbye to him on his first day of school.
I've lost out on tucking him into bed with a night time story and kissing him goodnight.
I've lost out on taking him on trips out to farms and zoos.
I've lost the chance to have Christmas day with him, seeing his face when Santa has been.
I've lost the chance to wipe away his tears when he falls over and comes to me for a magic plaster.
I've lost out on helping him with homework projects, worrying that it won't be done on time or that it won't be the best in the class.
I've lost holiday memories with us all together.
I've lost out on his birthdays, watching children run around my house and the joy on his face when he comes downstairs to all his presents.
I've lost out on telling him it'll be OK when he falls out with his best friend at school.
I've lost the chance to watch him play football or rugby, I've even lost the chance to see what sport he chooses.
I've lost out on him bringing home his first girlfriend.
I've lost the chance to see if he gets into university or college.
I've lost out on helping him move out.
I've lost his wedding day with me weeping into Mattie's shoulder.
I've lost the day he tells me that he's going to be a dad and I'm going to be a grandmother.

So never tell me that I "just lost a baby". I lost his whole life, not just the nine months he spent with me.

Guilt.

Since as long as I can remember, I've always felt guilt very strongly. I'm one of those people that do something and then think about it after. This is a very silly way to live as I often end up making mistakes and spend a long time after feeling guilty. Maybe it's the Catholic in me or maybe I just have an overactive conscience...either way, when I feel guilt I feel it hard. My first reaction when the midwife put her hand on my leg gently and told me that she was "so sorry" but there was "no heartbeat" was guilt. I remember very vividly wailing that I was "so so sorry" to Mattie. I felt guilt and I still do, very strongly.

It's not even just one solid type of guilt. I feel it in so many different ways and most days it consumes and overwhelms me entirely. Speaking to other mums that have lost their babies due to stillbirth in particular, it seems to be a very common feeling. I think a lot of "outsiders" to our grief really struggle to understand what we are feeling and why. So I'm going to try and explain it, as best I can. Obviously this is my personal experience and my feelings so they aren't necessarily transferable to everyone!

Failure - As awful as it sounds, I felt a failure the day I discovered I was pregnant with Freddie. If you know me personally, you'll know that Mattie and I had only been together for 3 months when I fell pregnant. It was a massive shock as I was using birth control and obviously we were in the very early stages of our relationship. I thought he would leave me, I mean you're lucky if you find someone that wants a relationship, let alone a relationship and a baby! As it turned out, when I told him he replied "oh thank god, I thought you'd cheated on me". And that, was that, I also felt like I was a failure to my parents. I didn't work at my A Levels, I didn't go to Uni (I did get in, I just preferred to work), I didn't do driving lessons... I wasn't the golden daughter I could have been in short and now I was pregnant to add to my list of failures. My parents were far from impressed initially. My conservative father refused to speak to me for a week and my mum was convinced Mattie and I would never last. However, towards the end of my pregnancy my dad had made us a crib and my mum was buying bits for Freddie left, right and centre. When I was told Freddie had died I felt a failure all over again. I'd taken their grandchild from them and I'd taken Mattie's son from him.

Blame - I blame myself, entirely. So many people have told me "It's not your fault, you can't blame yourself". But I do, I think I always will. To me, a mother should always protect and care for their child and I can't shake the feeling that I let him die. It was my body that should have protected him and it was my body he died in. I did everything I was supposed to, took my vitamins, stayed healthy, ate well (mostly), cut out alcohol, avoided no-no foods, attended all my appointments diligently...I did everything right. But, somewhere along the line I must have slipped up. Maybe I didn't notice something, maybe I should have asked more questions, pushed for better care? I don't know. The whole nine months drift through my mind as I desperately try to think of something, anything that I could have done. And I can't think of anything, which makes me feel worse. I must  have missed something fundamental and as a result my beautiful little boy died.

Anger and jealousy - I feel so, so guilty about the feelings of anger and jealousy that sometimes hit me. I look at pregnant mothers with a cigarette or drink in their hand and I have to restrain myself from slapping them across their face and shouting "WHAT ARE YOU DOING?" I spent my whole pregnancy protecting and shielding my unborn child from every possible danger and yet there are mothers who seem to not care about their baby, all they care about is themselves. I mean really, how hard is it to sacrifice getting drunk for nine months? I also see mothers whine and complain at every opportunity about their baby. I would do anything to have a wild toddler running circles around me, to change a dirty nappy, to spend all night without sleep nursing my child. I understand that looking after a baby is difficult and stressful, I really do. But when I see people that only complain, it kills me. Don't you know how lucky you are? Treasure every second. Because that's a second I never got and never will get with Freddie.

I had no idea that I would lose my baby and I had no idea how much it would hurt. Guilt is only one tiny part of losing your child, I feel so many other emotions daily. It's torture. But it is easing very slowly, especially the anger and jealousy.

What types of guilt have you experienced?

The New Normal Project

The new normal is a phrase widely used by those who have lost a baby. It's a completely different way of life, like nothing you'll have ever experienced before. You can break up with a partner and it hurts but, eventually, things just go back to normal. You lose a baby and the entire trajectory of your life is altered in one, swift and devastating blow. Everything you were certain about, everyone you were certain about are smashed into tiny pieces. The house you planned to raise your child in? Tainted. That friend you've known for years? Gone. That TV show (One Born Every Minute) you used to love? Ha. Forget it. Your whole world is turned upside down and you're left in an emotional, painful state and before long you realise, this is how it is now. This is my life, this is my "new normal". 

It's so very unfair. We have to rebuild our crushed world that we lovingly created and we have to rebuild it with key pieces missing. It's an impossible task and so we have to make a new world. It's not as good and we miss our old world but it does the job (just) nonetheless.

The New Normal Project is nothing fancy, nothing groundbreaking and it's not going to make the pain you're feeling go away. It's just a simple concept. It's a platform to tell your story and how your life has been altered. For example: I've moved house because our old one held to many painful memories, I've got a puppy instead of a baby now, I'm debating changing career as I don't know if I'll be able to return to childrenswear...

If you want to tell your story and how your life has been changed just go to the Contact Me page and send me an email containing:

- Your name

- Your baby's/babies' name(s)

- Your blog name/website address

- Your story (it can be as detailed or as brief as you like)

- What's changed in your life.

I'm really want gain a collection of stories to show parents that they aren't alone. If I could describe how I felt after the first initial few weeks it would be isolated and confused. I was constantly questioning if what I was feeling was normal and left wondering if anyone else had been through this and survived. I also want to use this as a legacy for our babies, so that their names are out there in black and white because they exist and their stories deserve to be told.